Parenting your Chronically-Ill Young Adult
Becoming an adult is a challenge these days. It’s even more challenging if you have chronic physical or mental illness, pain and/or disability. And it is equally challenging when parenting one of those kiddos. Here are some suggestions about what tends to work, and what tends not to work – although, of course, every child is different, and every parent-child relationship is different – so, take these as suggestions only and use what works for you.
By separation anxiety, I mean yours! It is normal for young adults to become more and more autonomous as they separate from their family of upbringing and learn to stand on their own feet. This can be very anxiety-provoking when you are acutely aware of their struggles. Maybe you know that they have extreme anxiety around dealing with paperwork or making telephone calls. You may wonder, “how are they going to manage in their own place?” But hovering and fussing around isn’t helping them or you. Take a breath, do a guided meditation, and learn to be more patient than you ever thought possible.
If you have a young adult who sometimes goes ‘quiet’ and you have concerns about self-harm, it can be a good idea to have the name and number of a partner, friend or coworker who you can contact to check on how they’re doing. However, this must only be on rare occasions. Don’t use them as a way to deal with your anxieties.
They’re Still Here!
If your young adult is still living at home because of their health, and you are both happy about that, then there is no problem. If either of you are less than enthusiastic about it, then it’s time to give them their own space as much as possible, set boundaries and ground rules that work for everyone, and negotiate for shared time rather than assuming that they want to be around you 24/7. It may also be time for them to assume some of the household duties (to the extent that their health allows) so that they are building transferrable skills, and learning that being an adult comes with responsibilities.
Mind Your Own Business!
Privacy is something which everyone deserves. Our children get less privacy when they are young because that is tempered by the need to have some level of control over their lives to ensure that they are healthy and safe. However, adults have the right to privacy, period. Your kid’s computer, cellphone, finances, diary … all off-limits. If you have concerns, talk to them – it’s the grown-up thing to do and they should be able to expect you to model what being an adult means. They don’t need your permission to go out, but they may need your help with transportation. If you’re willing to do that, you’ll meet their friends and be part of their life way more than if they get grilled every time they leave the house.
What They Need versus What You Want to Do
Often we think we really know our kids and their needs – and we probably do, more than anyone in the world … except them. If we insist on helping the way we want instead of what they need, then we prevent them from growing. For example, if they tell you that they can handle taking the bus to work this week, and don’t need a lift – you may not be sure they can do it. But what’s the worst that can happen? They try it once and then need assistance. But what’s the best that can happen? Maybe they make progress and conquer a new skill! Don’t second guess them. Yes, it’s hard watching them struggle a bit. But that, as the kids say, is a you problem. Don’t make it theirs.
Work together with your kids to make contingency plans that help keep their lives on-track. If they take prescriptions, and you know they have difficulty filling them – keep a few days’ supply so that they won’t ever run out completely. If they’re travelling, and you worry that their ADHD will cause them to lose their passport – take a scanned copy backed up to the Cloud and make sure you both have a photo of it on your phones. There are creative solutions to most problems. Oh, and the occasional home-made mac and cheese never hurts, either!
Parenting Without Judgement!
Make parenting a no-judgement zone. If they get into trouble, they won’t ask for help if they know they are going to hear ‘I told you so’. Minimize issues and let them know that adult life is hard, but manageable, and most things can be fixed. Be ready to help when it’s needed, and be prepared to feel a touch neglected when they’re having a good spell and don’t really need you as much! And quit judging yourself, too. You’re navigating one of the most difficult tightrope walks of all – being there for a child who wants to be independent but who can’t quite manage it yet. You aren’t always going to get it right, and neither are they. Don’t beat yourself up about it. The best thing you can do for your kid is be there for them when they need you to be, and love them, always.
If you find that you are struggling with parenting, don’t be afraid to seek help. It can be a relief to realize that many other people struggle with the same issues. I know it’s hard, but try to let other people in. It can be easy to assume that you are the only one who can help your kid. But even if that’s so, maybe other people can help YOU. Maybe your partner can do the laundry or the supermarket run this week. Don’t get so blinkered that you exhaust yourself completely, because then you won’t be able to help your kid. I am not suggesting that you always put yourself first – no parent of a chronically-ill child I have ever met is able to do that. But I am suggesting that you don’t put yourself last.
Look How Far They’ve Come
It can be hard, when you have a kiddo with chronic health issues, to get bogged down in doctor visits, prescriptions, rough nights, trips to the ER, sensory overloads, etc, etc. But looking back a couple of years usually lets us see the progress which has been made. Maybe things don’t look like you expected them to. But maybe your journey, and your young adult’s, will end up being more meaningful than you ever expected. Celebrate the wins!
We’d love to hear what works for you and your young adult. And if you could use support in your parenting journey, contact us to see how we can help.